Wednesday, February 01, 2012

one day left to live series - 27 months and 11 days

The pulmonologist and the gastroenterologist both feel we have to continue vital stim and repeat the swallo study in 2 months. And if necessary we can get a CT scan of Sripathi's lungs. In the mean time we had been to the Natural history and sience museum. It was again a drab. They charged a lot of money but there was very little to see, not efficiently lit and several exhibits we're missing the description tags. And to make our visit a whole lot sadder, Sripathi had a seizure in the museum. and we when came back home he had a fever of 103.2 rectally. Dr.Bhatt has prescribed a steroid over the nebulizer and also the Amox antibiotic. He is still recovering.
I spent time reading the guide book and the sample assessments provided in the sensory learning kit. This is an amazing gift to me from Ms.Cynthia. I hope I get to complete the assessment with Sripathi, it will greatly help me in unrest adding his choices and also I'll be able to share this with his teachers and other care givers. Also I'm trying to work with Sripathi on the switches and the iPad apps. With some motivation mostly with food I guess I'll be able get something from Sripathi.