one day left to live series - 8 months and 24 days

The Good, Bad and Ugly of this week

The Good, Sripathi is eagerly learning to lift his head up!!!
It is really a big deal that is attempting to lift up an almost 6 pound head. I'm so proud of him. Its not a one time effort. He is frequently trying it everyday now for the past 3 or four days. I showed a photograph of Sripathi with his head held up to Miss. Peg and she was so amazed. She said he is taking a lot of effort to do what he is doing. And when Miss. Susan was showing him the light box, he almost touched the pinwheel and then turned over and lifted his head up and she was so happy to see him do that. So this is more than just The Good part.

The Bad, no OT yet. The one place we were supposed to take him for evaluation on Monday was a not so great place. That's what Miss.Peg felt "if we are having to travel 13 miles every week for his therapy it better be worth it". So now we've found another OT location a little closer to where we live, but we are yet to get an appointment with them. So hoping it works out soon. And both Miss.Peg, Sripathi's physical therapist and Miss.Susan, vision therapist have good opinions of this new place. So The Bad part is no longer bad.

The Ugly, Sripathi was fine all this while but once he started rolling over and trying to lift his head, because of the weight he sort of drops his head down with a thud. On top of it I had put bracelets on his hands so he kind of hit his head on the bracelets as well. And now he is bruised his head, cheek and wrist. It started out as red spots and by that night it started to swell. The next day he continued to roll and lift and drop his head and these bruises got worst. So we got an appointment with his pediatrician. When we went in to see her we also noticed that his wrist and fingers on the left hand were swollen. So after examining all the bruises Dr.C was also not sure if it was all because of a bracelet. She doubts it could be some insect bite. So she has now prescribed an antibiotic Keflex 4cc thrice a day and topical cream Mupirocin. So hoping this will cure his bruises and most importantly NOT retard him of his head lifting ability. So waiting for The Ugly part get prettier soon.