In the meantime Sripathi's blood work results arrived and his zonogrem level was at 15.9 which meant that we still had provision to go up on his meds if necessary. I mentioned to the nurse that Sripathi still gets spams at least once a day. So she discussed with Dr.W. So now Sripathi is on 3 zonogrem capsules every night. That's apart from Keppra. And his spams, though they do occur often, they are not too severe or last too long.
Fingers crossed!
Finally we are talking about Vision Therapy!!!
I had called the school district last week trying to inquire as to when Sripahti's vision services would begin and they told me that ECI had not yet sent his records and that is why the delay.
So the vision therapist from the school came home to asses Sripathi on 14th of June 2011. I was really impressed and content to know that Ms.Carter was aware of CVI and also Dr.Roman's book.
The first thing she suggested was to have a little sensory play area/room for Sripathi with as many sensory, textured, colorful and musical and lighting up toys in and around so that he tends to look and feel them. Initially or rather depending on the child's ability it would be accidental. But sooner or later his senses would be stimulated by the look and feel of his surroundings.
My Hadley instructor Ms.Worman had sent me a link from the wonder baby website; here you can find the instructions to build a PVC sensory area.
http://www.wonderbaby.org/articles/make-your-own-sensory-play-area
Which is cool, but sadly I feel I'm not so capable of following instructions to the dot and that too engineering such a delicate and detailed structure.
First I wanted to try to make a temporary place like a sensory area for Sripathi and have an idea to design something that is stable and suitable for long term.
We had this small table at home which I used as the main play area, then I just started celo-taping stuff and toys and chains and what not to hang form under the table. Then I placed a mirror on one side and surrounded the remaining sides with cushions and toys.
So have a look at Sripathi in is his adapted sensory play area.
Anyways I came up with a better idea of building a sensory area from what I found on Amazon and I discussed these with Ms.Carter today and she was very impressed with the idea.
Here are the stuff I'm planning to use from Amazon
http://www.amazon.com/gp/product/B000G1YW98/ref=ox_sc_sfl_title_9?ie=UTF8&m=ATVPDKIKX0DER
http://www.amazon.com/gp/product/B000KKB2OS/ref=ox_sc_sfl_title_10?ie=UTF8&m=A2UDNPGKURPVSY
http://www.amazon.com/gp/product/B00006RSWT/ref=ox_sc_sfl_title_1?ie=UTF8&m=ATVPDKIKX0DER
Additionally I’m going to buy few pieces of wood to build a frame and nail down the mosquito net on to the wooden frame. Then I'll use sticky back Velcro’s to fix the net frame to the upper part of play yard like a ceiling. That way I can tie things to the net and let them hang around.
Well all this idea and stuff seem great, but I hope I'm some were close to making an efficient play are for Sripathi. I guess I have to trust that well begun is half done!
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