one day left to live series - 14 months and 10 days

The last month was a roller coaster ride.

I left my last post with an appointment with the ophthalmologist.
It went fine. Dr.B felt that the nystagmus was more due to a neurological disorder. Otherwise he felt that Sripathi was a little far sighted, but yet within the range so he also suggested to give it time. Apart from that his congestion has improved with the use of the nebulizer.

BTW with the recommendation from the occupational therapist at Shriners hospital we bought Sripathi the vest from SPIO. It really seems to help his back, when i prop him up. And also even otherwise it makes it easier for us to carry him with the suit on as it controls his tone to some extent.

For the new year we had been to Houston Namadwaar to participate in the Nama Sapthaha Utsav held between 27th December 2010 thru 2nd January 2011. It was a long and joyous event. Sripathi sure enjoyed all the attention.

We returned from the Utsav on the 1st of January 2011 and both I and Sripathi fell ill. But we sort of recovered within a day or so. We had to because Sripathi had a follow up appointment at Shriners on the 4th of January.

He was provided with the orthopedic braces for his legs. They also customized a standing frame for Sripathi. Since we did not have enough space in our car we could not bring it. But Shriners is kind enough to hold it for us. We never imagined that we could get a standing frame for Sripathi, and even if we could get one we were not sure if we can afford one, but blessing are abundant that we not only got the standing frame right away the fact is that it is provided to him for free. Shriners is actually lending us this Standing frame for free for as long as it fits him.

So as we are counting our blessing this year, we love to wish everyone a very happy, healthy, satsang filled, prosperous new year 2011.