Saturday, January 22, 2011

one day left to live series - 14 months and 26 days

Yet another busy week.

Its been a while that our pediatrician has been advising us to keep a local neurologist here in Orlando in loop with regard to Sripathi's condition. That way in case of an emergency we would have someone here in Orlando address his case immediately rather than wait for directions from Texas. So on that regards we finally visited Dr.K, Sripathi's neurologist on 18th January here in Orlando. Hearing about Sripathi's short seizures during sickness she prescribed Clonazepam 0.25mg twice a day on days when he is prone to seize. Generally Sripathi is to prone to seizures when he has any bodily discomfort like congestion, constipation, fever or on days he gets vaccination shots.

In addition his neurologist wanted to get an EEG on Sripathi so that she can know his current condition. So we went to her office again on 20th January. The EEG went fine, we are expecting the results next week.

BTW in between on the 19th Sripathi got his first haircut. His hair had grown real long, but we were not keen about getting his hair cut any sooner because its our family tradition to visit our family deity in Tirupathi for the first tonsure. But his long hair was causing several health issues, like cold and fever. So upon consulting with the elders from our family we were advised to get his hair cut but to collect the cut hair and to offer to Tirupathi the next time we travel.

So Sripathi is all renewed with his new makeover ;)



And over a couple of weeks we finally got the swing setup for his therapy. He seems to really enjoy being on the swing. TOUCHWOOD.

3 comments:

lavanya said...

How cute is that!! He looks adorable in his haircut.Now I see he is totally daddy jr:-)

ggop said...

What a beautiful child! I stumbled upon your blog because I was looking for info on hypotonia in the blogosphere.

My son has hypotonia and he was so freaked out when he went for his first hair cut.

Thank you for sharing your story.

Anonymous said...

Geetha, Sripathi looks like a big boy with his hair cut, but still cute :)
Hema