one day left to live series - 11 months and 27 days

We recently found about water therapy for babies with hypotonia and developmental delays. So I checked with Sripathi's physical therapist if we can try water therapy for him. She was very supportive about the therapy and we immediately bought the equipment from Water Way Babies with kind assistance from Nancy.

This morning when Ms. Peg arrived, I told her that i had filled the tub and its ready for Sripathi's therapy. She was all excited and helped me put the ring around his neck and lower him into the tub. He obviously looked perplexed his eyes widened and he started crying but as we started singing all the rhymes that we used to sing for him during PT, slowly he calmed down to the song but was still very scared. But Peg helped him move his feet and then he was fine. He kept moving his feet, started feeling the sides of the tub and then I started moving him hands. He could reach the floor of the tub and was able to stand with one foot. I can't say he likes it, but I'm guessing he will be okay after a couple more sessions in the water.

I'm so grateful to Peg for helping me with the therapy. Its really hard for just one person to handle a baby in water. Well eventually I'll learn to do it alone but its just safe to have one more person around.

That's with water therapy. And about Anat Baniel method its way too expensive for us to visit Anat herself for therapy. So I hope we could at least make it to Gainesville again but for a longer session than before.

Bye Bye Paati

Sripathi's grandma is returning to India.
He will miss her games and I'll miss her help in the kitchen.
But I'm also glad she is going back to India where she can resume all her usual activities, none of which she could do here in the US.

Bye Bye Paati

(And Hema ji thanks for the info, I'm trying everything everyday, now he is getting closer, but still poops like a goat :)

Golu 2010

Navrathri 2010 - Season for the doll fesival of south India. Last Sunday we had a navarathri satsang with golu.

24 Puratasi 2010

one day left to live series - 11 months and 11 days

Consistency is not Sripathi's game. A visit to the gastroenterologist resulted in increased of lactulose from 7.5 ml to 10 ml twice a day. Added to it Dr.B strongly recommended giving Sripathi an overload of fluids. So we came back to try anything and everything to help Sripathi poop.

Some of the things we tried abundant fluids like apple juice, orange juice, prune juice, pear juice. Apart from fluids some of grandma’s therapies like juice of dry grapes soaked the previous day, boiled and cooled water of caraway seeds, boiled mashed corn, some tea.

Somehow finally he did start pooping regularly for the past 3 days. But sadly we are unable to determine what helps him and he is still on medication as well. Basically he is just not consistent with one method of relief so we just have to keep doing every method we know on a frequent interval.

one day left to live series - 11 months and 3 days

Thank God for a happy baby at last. After over 3 days of constipation and of course followed by cluster of seizures almost 7 in a day! We informed about his condition to the pediatrician and neurologist.
They discussed with each other and the pediatrician later discussed Sripathi's case with a gastroenterologist. Then they prescribed Lactulose 5 ml twice a day. Then after a day Sripathi finally had a bowel movement. Now he is on 7.5 ml twice a day.
But since his seizure was not a welcome sign the neurologist suggested to hold on the wean off process on the phenobarbital. And on top of it the keppra was increased to 5 ml twice a day.
I'm grateful to the pediatrician who takes so much care every time she examines Sripathi or prescribes medication or administers vaccinations.